Week 2 and hospital stint
Week 2 of live fearless is over and I was only able to do 5km three of those days. I went into this challenge knowing my health may get in the way of completing it but it doesn’t mean that I’m not annoyed that I’m not going to achieve my 5km a day now ?
Updated goal is to just go for a walk everyday, my health is more important than trying to get to the 150km mark before the end of September ??
I was in hospital for a bowel obstruction due to scarring from my colectomy surgery. If anything this happening during live fearless just puts an emphasis on how important it is to raise funds for crohns and colitis Australia
Week 1 Done!
So week one is done and I am at 34km, 1km shy of the 5km a day. Feeling great!! Newcastle has been blessed with some amazing weather this first week of spring, I just hope it stays that way so I can keep getting in my 5km!
A snippet of my story
At age 14, after being sick for about 6months, 2 hours away from home in the Sydney Children’s Hospital, I was diagnosed with Crohn’s disease (although it has now been changed to ulcerative colitis) and I was told there was no cure. Being diagnosed with a chronic illness at any age, let alone when you’re a teenager is tough! I was put on drugs that suppressed my immune system and other drugs that stunted my growth at that age. I faced blood loss, very frequent trips to the toilet (20+ times a day), fatigue, anemia which resulted in many blood transfusion and iron infusions over the years, rapid weight loss in times of flare, pain and all these drug side effects.
At 16-17 I was put on a chemo drug as all other medications had failed. This greatly suppressed my immune system, put me at risk of infections and cancers, not to mention that I could turn anaphylactic to the drug at any time. But I was lucky enough that it gave me 7 years in remission.
At 23 I developed other auto-immune diseases- psoriasis and spontaneous allergies (yes it is a thing, I laughed when I was diagnosed).
Which brings us to 24 years old, my body rejected/became unresponsive to all medications used to treat ulcerative colitis my large bowel had become toxic. The only option was to remove it and with that taking the disease. But it wasn’t over, after surgery I developed a fistula, caught salmonella, fought a septic infection and will still need more surgeries in the near future.
3 and a half months post surgery and I’m still weak, have an iron deficiency, struggling with fatigue and aching muscles. Some days it’s so bad that it’s an achievement that I even get out of bed.
There are far worse cases of Crohn’s and Colitis than mine, not a lot of people achieve any type of remission like I did, I just wanted to give you an insight into my life with it. It’s too late for a cure to help my ulcerative colitis but someday when they find one, a 14 year old like I was will get told they have crohns and not have to go through all the shit I and many others have to go through!
I'm undertaking the Live Fearless Challenge this September
In light of a horrible year due to crohns/colitis, I'm putting on my joggers to achieve 150kms and raise awareness and much needed funds for people living in Australia with IBD.
All proceeds go towards Crohn's & Colitis Australia who provide research, education and advocacy programs for people living with IBD.
This is going to be a massive challenge for me as I’m struggling with fatigue from everything I’ve gone through this year BUT I’m making it my mission to become more active and to take this on. As I tackle this physical challenge, it will help to know that you have supported me with even a small donation.
Let’s find a cure for IBD!!!
All donations over $2 are tax deductible.
Thank you to my Sponsors
Mark & Jannette Mason
Gabby & Jarrod
Cheryl And Phil Norley