Flic Manning - VIC
Flic Manning has lived with Crohn's disease for over two decades. Flic is an Author, Speaker and Entrepreneur. She is the founder of Corethentic, a wellness system created on the back of her experience living with inflammatory bowel disease.
Flic is a certified wellness coach, personal and group fitness instructor, dance teacher, meditation coach, and a holistic pain management and mindfulness facilitator. She also has a Diploma of Neuroplasticity and a Certificate of Advanced Neurobiology. Much of her study is inspired by the symptoms she and her IBD clients have faced that are often not openly discussed; such as brain fog, cognitive dysfunction, mental health issues and the presence of inflammation throughout the human body.
Flic shares her passion for wellness as a keynote speaker and she has written a book about her experiences with invisible illness which is due out in the coming year. She believes it is her purpose to inspire others to embrace wellness and step into the light to be seen as fully rounded human beings, not just the symptoms of a disease; so that they can go from surviving to thriving.
Justan Singh - NSW
Justan was diagnosed with Crohn’s disease when he was two years old and has had many surgical operations to manage the disease. After surgery for a permanent ostomy when he was 21 years old, he became interested in raising awareness about ostomies and positive body image. As part of this mission, Justan invested his time and energy into improving his fitness and wellbeing. He his keen to share what he has learnt about exercising and diet with other young people who have struggled in the past with creating healthy lifestyle routines.
He is a goal-oriented person and when he sets out to do something, he becomes really driven. On one occasion he stumbled across a barista coffee machine and was inspired to become an expert in brewing coffee.
“It took me about a month and ten kilos of beans to learn the mechanics. I initially had to make eight coffees in the beginning to reach a decent taste, but now the first shot I make is perfect.”
He brings this energy and commitment to the Live Fearless Challenge.
Justan is also a dedicated volunteer within the IBD community and has given his time to be a speaker for CCA events and The Bottom End podcasts.
Tracey Murrin - QLD
Tracey was diagnosed with Crohn’s disease in 2005, 12 months later after a very aggressive year of a lot of hospital visits she had most of her large bowel removed and a permanent ileostomy. She is very passionate about raising awareness and helping others with IBD. Tracey walked the Great Wall of China with an amazing group of people in the name of IBD fundraising and awareness, also was a finalist in the Great Comeback Awards 2017, and walked in the Gold Coast Commonwealth Games Queens Baton Relay in 2018 for CCA awareness. The most personal event though, was her son’s concert where he sang the song about their journey called F.I.B.D.
"In 2015, I mentored at the first CCA Youth Camp in Queensland and returned as a mentor in 2019. It was at the first camp that I met an incredible young man by the name of Declan. Declan had been battling Crohn’s disease for many years and along with that severe depression, it was earlier this year that he took his own life. My Live Fearless team will be called Doing it 4 Declan. Declan and I became such good friends and I miss him every day. At his funeral, I made him a promise to keep fighting and keep raising awareness. I am keeping that promise. Our fight is not over."
Liverpool IBD Team - NSW
The Inflammatory Bowel Disease (IBD) Service at Liverpool Hospital was established in 2011 by A/Prof Susan Connor, Dr. Watson Ng and our first IBD nurse, Alexandra Sechi. Since then our team has expanded to include other IBD specialists, IBD nurses, allied health members, and administration staff, all crucial to the running of the service.
The Liverpool IBD team is focused on providing the best patient care we can and empowering patients during all their treatment decisions. The team is passionate about enhancing IBD healthcare delivery through research into and development of innovative models of care and integration of health information technology to improve patient-centred and value-based care.
We are an active member of the Australia New Zealand IBD (ANZIBD) Consortium and a key contributor to the development and implementation of the IBD clinical management software, Crohn’s Colitis Care.
It is an honour to be team ambassadors for the Live Fearless Challenge 2020. Our team shares the commitment of Crohn’s & Colitis Australia to provide support to those living with IBD and to increase awareness of IBD in Australia.
Bruce Rosengarten - VIC
Bruce has had an extensive senior executive career including roles that took him across our region and on a global basis. Despite being a Colitis sufferer for over 40 years, he still built a highly successful career, it just took him 39 years to admit publicly he has Colitis. He has often taken up roles in Not for Profit organisations as a passionate believer in supporting community.
Bruce is the author of Passionate Leadership, and today runs his own consultancy and is a member of several advisory Boards as well as being Chairman, Crohn’s & Colitis Australia. In 2018, he was the second highest fundraiser in Live Fearlessly, he went one higher in 2019 being the highest individual Live Fearlessly fundraiser with $9,001. In 2020, he wants to be chased again, and is happy to come second, third or even last, but beware he will fundraise hard for a cause he is very passionate about.
Brittani Nicholl - NSW
Brittani is a well-accomplished surfer from the Far North Coast of NSW, who was diagnosed with Crohn’s disease at the age of seven. She has had Crohn’s for 23 years.
A brief snippet of her surfing career includes various Pro Junior results, 3 consecutive NSW State Titles, an Australian Title, WSL WQS world ranking of 24, Australian representation in the 2016 and 2017 ISA World Surfing Games and Australian Team Captain.
Brittani’s health obstacles forced her to take a step back from competitive surfing, however, she is still involved in the industry and studying a uni degree.
Brittani has a contagious smile, a positive attitude, and loves to help others; she aims to create awareness of IBD and inspire other people who may be going through difficult times.
Brittani has been an Ambassador for Crohn’s & Colitis Australia since 2011, and she was the team leader of the highest fundraising team for the 2018 Live Fearless Challenge - Team 'Let’s Do This’.
Last year Brittani attempted the challenge not long after major surgery and this year she'll be doing the same with her most recent surgery happening in March.
"This year I faced one of my greatest health challenges and now have a permanent colostomy. I have previously required three ileostomy bags in my life, with the third one presenting the most issues."
The past 12 months have certainly been a challenge for Brittani, and although she is still managing surgical complications and disease complications, Brittani is determined to complete this year’s Live Fearless Challenge - and she encourages you to join in.
Melissa Lord - QLD
Back for her second year as part of our Live Fearless Challenge Ambassador team, Mel can’t wait to start tracking her KMs on the way to 150!
This year has proved difficult in more ways than one and Mel says this challenge presents a great opportunity to focus on our health and wellbeing. Whether you’re part of a team or taking on the challenge as a solo warrior, it is a great motivator to get out and about.
Mel was diagnosed with Crohn’s disease at 18 and endured around 10 years of treatment for her symptoms, in and out of hospital. Her disease escalated towards the middle of 2009 and the outcome meant she needed major surgery to create a permanent ileostomy.
As challenging as this decision was to make, Mel had tremendous support from her family, friends and clinical team and has no regrets. Ten years on, she is married with two sons, working full time, while sharing her experiences in the hope of raising awareness and helping people who find themselves in a similar situation. Mel has spoken at forums for Crohn’s & Colitis Australia and she was very proud to be a mentor at the CCA Youth Camp Fearless in 2019.
The IBD community is full of strong, resilient people and Mel is grateful to be a part of it.
Kiara Schonberger - NSW
Kiara is a 22-year-old Commerce and Education student who has been living with Crohn's disease for 6 years. Kiara's diagnosis at 16 didn't come as a shock due to her family history of Crohn's disease and other autoimmune diseases. At the age of 18, Kiara experienced a significant flare up of her Crohn's disease, leading to hospitalisation and an entirely new treatment plan. Kiara now receives regular Infliximab infusions, allowing her to keep up with her academic studies, part-time work, social life, and dancing.
Last year's Live Fearless Challenge (2019) was the first time Kiara publicly spoke about her diagnosis of Crohn's disease. For Kiara, hiding her chronic illness was so common that many of her close friends didn't realise the significant impact this disease had been having on her daily life.
Since the 2019 challenge, Kiara has continued to spotlight Crohn's disease and advocate for young people living with this often invisible illness.
Jamie Hubbard - VIC
Jamie is 25 and has been living with Crohn’s disease since the age of 17.
He tries to keep active as much as he can. He loves his sports and music is also very close to his heart, and has played drums for over 10 years.
He has been living with Crohn’s disease for nearly 8 years now, after being diagnosed mid way through Year 11.
Jamie is a qualified Personal Trainer, although he doesn’t currently work as one, it’s still a passion to help people with fitness goals. He has been lifting weights since the age of 16, and anything that’s challenging and physically demanding gets him going. Jamie says there’s nothing more satisfying than helping others who need it, whether it be small or large, and loves seeing someone’s face after they achieve a goal that they’ve been stuck with for such a long time.
Ashleigh & Sophie - NSW
Ashleigh and Sophie were both diagnosed with ulcerative colitis in 2019, after their health deteriorated. Both girls were 11, in year 5 at the time, both with the same doctors and living in the same area. In early 2019, both girls were in and out of hospital and it was an emotional time. It was through reaching out for support and connecting to support groups in Australia that their mothers found out they both lived near each other and shared a lot of similarities with this disease. Ashleigh and Sophie started talking and it was like they both had found someone who understood.
Today, something that has been life changing has brought these girls together. They support each other, share a friendship and share infusion days!
Ashleigh and Sophie share a love for their birds Charlie and Buzz, and recently dyed their hair purple to raise awareness for ulcerative colitis together on World IBD Day. The girls are excited at the opportunity to be Live Fearless Ambassadors for 2020 and they want to raise awareness and let people know they are not alone.